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The Gen X endo experience: What it’s like to live for 24 years undiagnosed
The passionate, resilient and endearing Pru Gibson from Kiama NSW, shares her experience of navigating life with a chronic...
The pain of endo
A couple of weeks ago I participated in an online survey as part of Macquarie University’s research project titled The...
Notes from a nurse: How the healthcare system has failed EndoWarriors, and how we can do better
Chloe Timmer is a 31 year old registered nurse who has worked in the field for 5 years. She has experienced endometriosis...
Why working from home works for me (and my endo)
I was an early adopter of working from home. Almost a year before the government mandated lockdowns, the scramble to...
Misdiagnosis, Stage 4 Endo and an Ileostomy: Sally Power’s endo journey
Sally Power shares her experience living with misdiagnosed stage 4 endometriosis; hoping to spread awareness to the...
Endo in The Alice
Kate Muir was 15 years old when she realised something wasn’t quite right. With heavy periods and clotting, her period...
Adenomyosis: A word too few people know
My name is Olivia-Jane Gaskell. I am a 41 year-old mum of two daughters, a wife to an amazing and very supportive husband...
When carrots won’t cut it
I’ve seen quite a number of doctors in my time. There was a stage where I seemed to be collecting ‘ologists’ left right...
Endometriosis and FODMAPS
Endometriosis now affects approximately 1 in 9 women (1). This amounts to around 200 million women worldwide with...
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Just don’t give up, no matter what
By Joanne Tyson Looking back now I always knew something was not right. I got my period when I was 12 years old. Every...
I run despite endo
By Shirley My name is Shirley and I suffer with endometriosis. I found a way to manage my disease through diet and...
Pelvic floor physiotherapy – 3 appointments down, a lifetime to go
There is a lot that we don’t know about endometriosis. The little that we do know is a bit grim. Pelvic pain,...
I wound up with an ostomy because of endo
By Anonymous With it being Endometriosis Awareness month and all, I wanted to put myself out there a bit. (Please keep...
Fiona Coleman’s story
By Fiona Coleman Hello, I am just sharing part of my story as it is a very long one, I am in my early 50s now....
Endometriosis Australia Ambassador – Sarah Maree Cameron
Sarah Maree Cameron can be heard on Melbourne’s Nova 100 from 1pm to 4pm. Since her start in commercial radio in 2007,...
Endometriosis Australia Ambassador – Mel Greig
Mel was a teen runaway who struggled with peer pressure after moving from the farm to the city in South Australia at...
A snapshot of Naomi’s life with endometriosis
By Naomi From the age of 13, I experienced horrendous haemorrhaging which seemed to last most days of the year. This...
Kara O’Grady-Coen: My Endometriosis Journey
By Kara O’Grady-Coen It’s been four years since I was diagnosed with endometriosis stage 4. Before my diagnosis, I was...
Elle Watmough – EndoWarrior
We'd like to thank Elle for being brave and sharing her story with Australia and the world. By sharing your story you...
A snapshot of Naomi’s life with endometriosis
By Naomi From the age of 13, I experienced horrendous haemorrhaging which seemed to last most days of the year. This...
Creative Arts Ambassador – Fiona Stevens
By Fiona Stevens I am genuinely thrilled to be invited as Creative Arts Ambassador to Endometriosis Australia and I...
See you later from Jodie
It is hard to believe that I have to say ‘See you later!’ to the Board of Endometriosis Australia and all the...
Jessica’s battle with Diaphragmatic/ Thoracic Endometriosis (Part 1)
By Jessica Panetta My period started at the age of 10 and a half. At the age of about 13, I was experiencing some...
Our newest Ambassador – Ellie Angel-Mobbs
A huge welcome and thank you to Ellie Angel for joining the Endometriosis Australia Team. Here is a little of her...
Donna’s Diaries: Be Fearless!
This is a little note to inspire you to keep fighting. I had the privilege to run this morning (yes very early 5:40am)...
March into Yellow – I took the Yellow Challenge to show my support for my sister
By Amy Neville After 2 years of fainting, pain and weight loss my sister was finally taken to hospital and underwent a...
Kara O’Grady-Coen: My Endometriosis Journey
By Kara O’Grady-Coen It’s been four years since I was diagnosed with endometriosis stage 4. Before my diagnosis, I was...
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About Us
Endometriosis Australia is a nationally accredited charity that endeavours to increase recognition of endometriosis, provides endometriosis education programs, and provides funding for endometriosis research.