Endometriosis Australia

Some Endo Facts

Endometriosis affects 1 in 7 women, girls, and those assigned female at birth*

On average, it takes 6.5 years to be diagnosed with endometriosis

There are over 830,000 individuals living with endometriosis in Australia

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About Endometriosis

Endometriosis is a common disease where tissue similar to the lining of the womb grows outside it in other parts of the body. More than 830,000 (more than 14%) of Australian girls, women, and those assigned female at birth* live with endometriosis at some point in their life, with the disease often starting in teenagers.

Symptoms are variable and this may contribute to the 6.5 year delay in diagnosis. Common symptoms include pelvic pain that puts life on hold around or during a person’s period. It can impact fertility for some but not for all.

Endometriosis most often affects the reproductive organs but it can also be found in and around the bowel and bladder. It has been found in every part of the body, including the skin, joints, lungs and brain.

In an Australian government report, endometriosis is reported to cost Australian society between $7.4 and $9.7 billion annually with two-thirds of these costs attributed to a loss in productivity with the remainder, approximately $2.5 billion being direct healthcare costs.