Some Endo Facts
Endometriosis affects 1 in 9 women, girls, and those assigned female at birth*
On average, it takes 6.5 years to be diagnosed with endometriosis
There are over 830,000 EndoWarriors in Australia
Endometriosis is a common disease where tissue similar to the lining of the womb grows outside it in other parts of the body. More than 830,000 (more than 11%) of Australian girls, women, and those assigned female at birth* live with endometriosis at some point in their life, with the disease often starting in teenagers.
Symptoms are variable and this may contribute to the 6.5 year delay in diagnosis. Common symptoms include pelvic pain that puts life on hold around or during a person’s period. It can impact fertility for some but not for all.
Endometriosis most often affects the reproductive organs but it can also be found in and around the bowel and bladder. It has been found in every part of the body, including the skin, joints, lungs and brain.
In an Australian government report, endometriosis is reported to cost Australian society $9.7 billion annually with two-thirds of these costs attributed to a loss in productivity with the remainder, approximately $2.5 billion being direct healthcare costs.
Latest in Endo News
Scenic Rim Trek for
Endo: 6-8 September
Brisbane High Tea:
Endometriosis and Pelvic Pain Clinics
Participate in research
Our Research Grants
Genetics and endometriosis: What we know and how it can help treatment
Written by Dr Brett McKinnon, Research Fellow, Institute for Molecular Bioscience, UQ Endometriosis in the family It...
Patient voice loud and clear for endometriosis research
Not everyone with endometriosis will experience the same symptoms or in the same way – it’s different for everyone....
Endometriosis and your relationship with food
Picture this. You have experienced painful periods since they first started. When you brought it up, it was normalised...
Our Ambassador Sophia Bender’s documentary on endometriosis
Endo & Us
Official short documentary for Endometriosis awareness
Join the fight today and help change the lives of over 830,000 EndoWarriors in Australia. Together, we can end endo.