About Endometriosis

The Basics

1. Symptoms

2. Diagnosis

3. Management and treatment

Endometriosis is a common disease where tissue similar to the lining of the womb grows outside it in other parts of the body. Nearly 1 million Australian girls, women, and those assigned female at birth* live with endometriosis at some point in their life, with the disease often starting in teenagers.

Symptoms are variable and this may contribute to the 6.5 year delay in diagnosis. Common symptoms include pelvic pain that puts life on hold around or during a person’s period. It can impact fertility for some but not for all.

Endometriosis most often affects the reproductive organs but it can also be found in and around the bowel and bladder. It has been found in every part of the body, including the skin, joints, lungs and brain.

Symptoms, diagnosis, and treatment

Management and

About Endometriosis Australia

Endometriosis Australia is the preeminent peak body for endometriosis in Australia. Since 2013, the organisation has been leading the charge nationally and internationally in raising awareness and understanding of endometriosis. Endometriosis Australia lobbied for and supported the development of Australia’s first National Action Plan for Endometriosis (NAPE), aimed at improving patient and medical community understanding of the disease. This was a continuation of the organisation driving the first discussion of endometriosis in Parliament in 2017.

Endometriosis Australia is a nationally accredited charity that raises awareness, educates and funds research for endometriosis. We are committed to empowering patients with the knowledge to be in control of their healthcare and promoting patient-centred care solutions.

Despite the growing awareness of endometriosis, the community and many health professionals lack a genuine understanding of the life-defining disease, which affects 1 in 7 women, 14% of the population and has no cure. Efforts have reduced the diagnosis time from 7–12 years to 6.5 years on average, but much work still needs to be done.

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