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Research Notice Board

To take part in research studies, simply click on the research project and you will be directed to a website or online form. If there is no link, there are instructions provided in the description.

*Endometriosis Australia is not funding these studies, just assisting the researchers in finding participants. Please ensure you check terms and conditions to ensure that you qualify to participate.

Some of the topics discussed and/or covered can be confronting or troubling to some participants.

If you need support, please reach out to
Lifeline 13 11 14 or Beyond Blue 1300 224 636.

Do you want your research project featured here?

To have your project featured on our page, please fill in and send
the following form to admin@endoaustralia.org.
woman in pain sitting on bed

MCRI LongSTEPPP research

Researchers at The Murdoch Children’s Research Institute (MCRI) believe that periods shouldn’t ruin your life.

MCRI’s LongSTEPPP project is a 5-year study that measures and tracks periods, pain, quality of life, and mental health in young people affected by period or pelvic pain and endometriosis to find out how to best care for them.

We’d love to hear from GPs or gynaecologists who are seeing patients with pelvic/period pain between the ages of 10 and 18, as well as young people who are dealing with pelvic and period pain.

Endometriosis, motherhood and family relationships

Would you like to help us better understand motherhood & family life while living with endometriosis?

This study will increase understanding about how endometriosis can impact daily life as a mother, as well as how mothers feel about their family relationships, and other potential forms of support.

Click the link below to participate in the survey.

Barriers to people with endometriosis discussing sexual dysfunction with treatment providers

We are recruiting participants for an online survey, which will involve some open-ended qualitative questions about their experiences of talking to their doctor about how endometriosis has affected their sex life. There will also be some quantitative questions about their sexual functioning and sexual distress levels. The survey is expected to take 30 mins, on average.

Pelvic floor muscle exercises and mindfulness for women with endometriosis-associated pelvic pain

This research study conducted by researchers from Monash University and Monash Health aims to investigate whether pelvic floor muscle exercises and mindfulness can be helpful in reducing pelvic pain. Your contribution will greatly assist us in designing effective physiotherapy treatments for females with endometriosis and pelvic pain in the future.

Participants will be asked to attend four face-to-face appointments at Monash University Peninsula Campus (Frankston), Melbourne, Australia and the other four will be telehealth sessions via Zoom.

If interested, please email Shaza.kadah@monash.edu.

Exploring financial burden and language barriers for people with endometriosis

This research project from Deakin University aims to understand experiences of living with endometriosis, especially the financial burden of endometriosis and the potential language barriers to the delivery of endometriosis information by healthcare providers.

Outcomes from this study may be used to inform and guide interventions targeted at managing financial security, enhancing practitioner-patient relationships, and improving diagnosis and support for people with endometriosis.

Endometriosis Illness Perception, Acceptance, and Compassion

This research project from the University of Tasmania is focussing how women and gender diverse people living with endometriosis view and manage different aspects of their symptoms, view their body, and information they would like healthcare providers to understand about endometriosis.

Complete an anonymous online survey below:

EndoCannED trial

Deakin researchers are exploring the potential use of medicinal cannabis for pain management in people with endometriosis. The trial will look at whether prescribing medicinal cannabis instead of opioids can reduce emergency department presentations for people with endometriosis.

If you have a confirmed diagnosis of endometriosis, are aged 20 and over, live in Victoria, and have presented to an ED two or more times in the last 6 months for pelvic pain-related symptoms you may be eligible to participate.

endometriosis word cloud

Body image sexuality and wellbeing

The research team at the University of Tasmania (UTAS) would like to understand how endometriosis impacts your overall wellbeing, body image, and sexuality.

Any person, assigned female at birth, aged 18 years or older, is invited to participate in this project via online surveys that are completed at a series of time intervals.

UTAS is keen to hear from people who may be about to have excision surgery or who have had previous surgeries.

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