To take part in research studies, simply click on the research project and you will be directed to a website or online form. If there is no link, there are instructions provided in the description.
*Endometriosis Australia is not funding these studies, just assisting the researchers in finding participants. Please ensure you check terms and conditions to ensure that you qualify to participate.
Some of the topics discussed and/or covered can be confronting or troubling to some participants.
The Endo@Work project is seeking input from Australian workplaces across all industries.
Western Sydney University, in partnership with Endometriosis Australia, have established Endo@Work, which aims to develop a set of workplace guidelines for employers to support staff with endometriosis in the workplace.
The research team at WSU seeks to identify and prioritise what Australian employers can do to support staff who are managing endometriosis to reduce absenteeism and improve their work productivity.
Endometriosis Management Plan (Endo-MP) Project
The Endo-MP project aims to develop and implement an Endometriosis Management Plan to support the navigation and management of endometriosis and pelvic pain for providers and their patients through primary care settings and is expected to improve the quality of life for individuals with the condition and reduce associated economic costs.
Barriers to people with endometriosis discussing sexual dysfunction with treatment providers
Pelvic floor muscle exercises and mindfulness for women with endometriosis-associated pelvic pain
This research study conducted by researchers from Monash University and Monash Health aims to investigate whether pelvic floor muscle exercises and mindfulness can be helpful in reducing pelvic pain. Your contribution will greatly assist us in designing effective physiotherapy treatments for females with endometriosis and pelvic pain in the future.
Participants will be asked to attend four face-to-face appointments at Monash University Peninsula Campus (Frankston), Melbourne, Australia and the other four will be telehealth sessions via Zoom.
If interested, please email Shaza.email@example.com.
Exploring financial burden and language barriers for people with endometriosis
This research project from Deakin University aims to understand experiences of living with endometriosis, especially the financial burden of endometriosis and the potential language barriers to the delivery of endometriosis information by healthcare providers.
Outcomes from this study may be used to inform and guide interventions targeted at managing financial security, enhancing practitioner-patient relationships, and improving diagnosis and support for people with endometriosis.
Endometriosis Illness Perception, Acceptance, and Compassion
Complete an anonymous online survey below:
Endometriosis Symptom Impact Survey
This study is anonymous and should take between 5-10 minutes to complete. Those with surgically confirmed or those with suspected endometriosis (as per imaging findings) are invited to participate.
If you have a confirmed diagnosis of endometriosis, are aged 20 and over, live in Victoria, and have presented to an ED two or more times in the last 6 months for pelvic pain-related symptoms you may be eligible to participate.
MCRI LongSTEPPP research
MCRI’s LongSTEPPP project is a 5-year study that will measure and track periods, pain, quality of life, and mental health in young people affected by period or pelvic pain and endometriosis to find out how to best care for them.
Body image sexuality and wellbeing
Any person, assigned female at birth, aged 18 years or older, is invited to participate in this project via online surveys that are completed at a series of time intervals.
UTAS is keen to hear from people who may be about to have excision surgery or who have had previous surgeries.
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