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EndoAware Workplace Accreditation Program for Employers

Endometriosis Australia’s Workplace Accreditation Program (EndoAware) enables organisations to sustainably and strategically take meaningful action to support their employees with endometriosis.

EndoAware was developed through a partnership between researchers at Western Sydney University and Endometriosis Australia. Each presentation, educational module, policy suggestion and support option offered within the EndoAware program is based on thoroughly researched evidence-based practices from Western Sydney University. Our primary goal is to empower workplaces to enhance their understanding of endometriosis, fostering environments of support.  

By equipping workplaces with knowledge and resources,  EndoAware provides tangible and practical benefits for employees suffering from endometriosis and employers, ultimately improving productivity and wellbeing for staff and their workplaces. 

Interested in becoming an accredited EndoAware employer?   

Questions? Email endoatwork@endoaustralia.org   

The current data shows that one in seven Australian women and those presumed-female-at-birth (PFAB) suffer from endometriosis. This means that endometriosis may be more common than diabetes. Yet many people have not heard of the condition and it can take many years for someone to receive a diagnosis. This is partly because endometriosis is commonly associated with reproductive health and the menstrual cycle; and menstrual problems are still difficult for people to discuss at work. It is important to note that endometriosis can affect the whole body regardless of the phase of the menstrual cycle and can occur even if the uterus is removed. While endometriosis is commonly associated with the menstrual cycle, it is not a menstrual disease per se. 

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EndoAware Workplace Accreditation Program Information

Eligibility

EndoAware is specifically designed to work with workplaces who are committed to support their employers suffering with endometriosis. 

You must fulfil all of the below requirements:

  • Be a workplace with operations in Australia  
  • Have employees (You can develop these guidelines regardless if any employees have disclosed they have endometriosis. Think of the guidelines as part of your HR offering, similar to parental leave).    
  • Be completely autonomous with own governance structure (e.g. have a CEO, board).  
  • Have authority to create and modify organisational policies and procedures   
  • Have the ability to assign an Endo Champion  

Those with endometriosis who gain and keep jobs attribute their success to flexible and reasonable workplaces, understanding and empathic managers and colleagues. By signing-up to the EndoAware Program, you are demonstrating your commitment to proactive work to incorporate these principles into everyday life at your organisation.

Introducing EndoAware to your organisation

Endometriosis Australia will present to your senior executive team and leaders from human resources. Along with information around the EndoAware program, the presenation includes education and awareness around endometriosis and its impacts on a person’s work and wellbeing.  

Policy Review 

Upon senior leadership buy-in, a researcher from Western Sydney University will work with Human Resources to integrate a endometriosis policy into existing workplace policies and practices. Policy suggestion and support option offered within the EndoAware program is based on thoroughly researched evidence-based practices from Western Sydney University. 

Implementation

Endometriosis Australia will conduct an online organisational-wide webinar to introduce the EndoAware program, endometriosis policy and education and awareness around endometriosis and its impacts on a person’s work and wellbeing. 

Following the organisation-wide webinar, all employees will be required to complete brief online modules. Each educational module is based on thoroughly researched evidence-based practices from Western Sydney University. Our aim is for workplaces to gain insights into the impact of endometriosis on individuals in the workplace, learn strategies for creating a supportive work environment, and understand the crucial role of managerial and leadership support.

Accreditation 

Once all staff have completed the mandatory online modules, your workplace will be accredited as a EndoAware workplace. Your workplace will be featured on Endometriosis Australia’s website and e-newsletters.  

Reviewing your commitment and tracking progress 

Your organisation will be asked to submit a review a year after you have signed up to be an EndoAware Employer, and every two years after that. This provides you with the opportunity to see how your organisation is continually striving to be an EndoAware Employer. The review process is a simple, online survey, enabling you to showcase the activities you have in place to support your employees.

Administration Fee 

Organisations that wish to sign up for EndoAware will be asked to pay an administration fee to Endometriosis Australia, based on the number of staff they employ (Full Time Equivalent). Fees are not a form of payment for service or a membership charge, and are non-refundable. The administration fee covers the initial sign up to the scheme, the first-year review and subsequent two-year reviews; it is not an annual fee. 

EndoAware is developed by a strong partnership partnership between Endometriosis Australia and Western Sydney University, grounded in robust research and evidence-based practices across Australia. 

Western Sydney University logo

Endometriosis Australia’s recent research completed in partnership with experts from Western Sydney University, the University of Technology Sydney, and Southern Cross University is informing the development of our Endo@Work program and policy development with the following findings: 

  • one in six people with endometriosis will lose their employment due to managing the disease. 
  • one in three will be overlooked for a promotion. 
  • 70% have to take unpaid time off work to manage symptoms. 
  • 50% said lack of workplace flexibility was a significant problem. 
  • 79% reported that work-from-home protocols made managing their symptoms easier. 
  • 60% said they will be more productively working from home. 
  • 90% thought flexibility in hours and working from home could improve their management of endo in the workplace. 

Those with endometriosis who gain and keep jobs attribute their success to flexible and reasonable workplaces and understanding and empathic managers and colleagues. COVID-19 restrictions (Work From Home) have demonstrated that for those with endometriosis, changes in working arrangements, mostly around the ability to self-manage working hours and rest breaks, improved their quality of life and productivity.*

*Endometriosis and the workplace: Lessons from Australia’s response to COVID-19 (Mike Armour, Donna Ciccia, Chelsea Stoikos, Jon Wardle)

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