Endometriosis Research Notice Board
Make a difference in endometriosis research – take part in a study today.
Click any project links below to access the research website or online form. If no link is provided, follow the instructions in the description to learn how to participate.
Some topics in these studies may be sensitive or distressing for some participants.
If you need support, please call:
- Lifeline 13 11 14
- Beyond Blue 1300 224 636
*Endometriosis Australia is not funding these studies but is helping researchers find participants. Please review the terms and conditions to confirm your eligibility before participating.
Add your endometriosis research study
Want to add your research study to the board? Here’s how:
To submit your research project, download the form below and send completed applications to admin@endoaustralia.org.
Clinical trial: Improve Endometriosis pain severity and interference
Do you have painful endometriosis? We’d love your help testing a new, online intervention developed to improve pain severity and pain interference.
The study involves completing 4 x 10-15 minute online training sessions over four weeks, as well as some pre and post-intervention surveys. The study will take approximately 2.5 hours of your time over 3 months.
To learn more and get involved, follow this link https://tinyurl.com/cbmi-endometriosis or scan the QR code in the flyer.
Questions? Email the research team at cbmi.endometriosis@sydney.edu.au
Diet and Lifestyle impact on symptoms of Endometriosis
Are you living with Endometriosis?
UniSA & UniSC are exploring how diet and lifestyle influence pain and other symptoms in Australians with Endometriosis. If you’re:
- Aged 18 or older
- A permanent Australian resident
- Diagnosed with Endometriosis
We want to hear from you! Participation is voluntary and will take less than 20-25 minutes of your time.
Join the survey today: https://uniofsunshinecoast.syd1.qualtrics.com/jfe/form/SV_1UlRJyfidm2FJyK
Testing Online Supportive Care Program for Endometriosis
At the Deakin University Mind-Body Research in Health Laboratory (MIRTH), we are recruiting participants for a trial, testing a new online supportive care program for people living with endometriosis. This study will be conducted online and available across Australia. As a part of this study, participants will have open access to the supportive care program and can use it as much or as little as they wish. All participants will be asked to complete regular questionnaires throughout the trial. Some participants will also be asked to participate in an individual interview to provide feedback on their experience of the program. Find out more here https://codeendo.deakin.edu.au/
Nutrition Stories of Women Living with Chronic Pelvic Pain
We would love to hear from women and those assigned female at birth about your thoughts on chronic pelvic pain and nutrition. This will help us to better understand the lived experience and plan better nutrition interventions for those living with chronic pelvic pain!
Endometriosis and Resistance Training
We invite you to participate in our research study, investigating the resistance training practices, perceptions, and impacts experienced by Australian’s diagnosed with endometriosis. We welcome you to share your experiences through a short, 12-15 minute online questionnaire. Your participation will help improve our understanding of resistance training and its role in supporting those with endometriosis in managing their symptoms. This study is proudly supported by Endometriosis Australia, working to improve the lives of those affected by endometriosis.
Cultural Perceptions of Menstruation and Menstrual Hygiene in Australia
We aim to explore different cultural perceptions to menstrual health and hygiene in Australia.
Aims:
- To explore how cultural backgrounds influence beliefs, perceptions and sources of information related to menstruation and menstrual hygiene among women in Australia.
- To understand the implications of cultural perceptions of menstrual health and hygiene to help identify any gaps in knowledge and resource availability.
Personal and Interpersonal Functioning of People Living with Endometriosis
We understand that living with endometriosis can have a significant physical and psychological impact on your life. This study aims to further understand how endometriosis influences the way you feel about yourself and your relationships with others, specifically in the workplace.
Evaluation of Gut Microbiota, Endocannabinoid Levels, and Inflammatory Markers in Endometriosis
Do you experience gastrointestinal symptoms from endometriosis and live in Sydney? NICM Health Research Institute is recruiting for the GutFloraRx trial, led by PhD candidate Ms Toobah Farooqi. This clinical trial is testing the safety and efficacy of medicinal cannabis (CBD oil, THC:CBD oil, or placebo) for managing GI symptoms like bloating, nausea, and discomfort. Products are provided free. Most participation is online, with a menstrual blood sample, faecal sample, and blood tests required. This study aims to support better symptom relief where conventional treatments fall short. To learn more or sign up here: gutflorarx@westernsydney.edu.au.
Barriers and Facilitators Influencing Access to Tertiary Pain Management Clinics in Australia
This study aims to understand the barriers and facilitators that influence access to tertiary pain management clinics in Australia. We are inviting individuals with chronic pain, their family members/carers, and healthcare providers to complete a short anonymous survey. These insights may help inform future policy, improve targeted interventions, and contribute to a more equitable healthcare system.
Click the link to find out more.
NECST Registry - National Research
💛 Have endometriosis or symptoms of it?
Be part of something bigger. Join the Australian NECST Registry — a national research initiative helping to improve the diagnosis and treatment of endometriosis across the country. Your experience can help shape the future of care.
Backed by leading researchers from NECST Network and the Grace Unit site research, this is your chance to contribute to research that truly listens to lived experience. 🔗 Learn more or sign up here.
Endometriosis Community Survey
Endometriosis Australia invites you to share your recommendations regarding future endometriosis research and the types of information and resources you would access. You can find out more and complete the online survey using the QR code or the survey link. This study has been approved by the University of Tasmania Human Research Ethics Committee (Study Number: 31971). Email any questions to Leesa.vanniekerk@utas.edu.au
The Role of Nurses in Endometriosis-Related Patient Care
This project focuses on the role of nurses in endometriosis-related patient care. We would like to understand the skills or knowledge a specialist endometriosis nurse may need and people’s experiences of providing or receiving trauma-informed care.
To find out more, click the button below.
Decisional conflict in individuals with endometriosis
We are seeking people who have been diagnosed with endometriosis to share their experiences of making decisions about symptom management. The survey includes questions about making those decisions, how you are feeling generally, and if treatment costs are a burden. The survey is anonymous, and the results will contribute to the creation of an online tool that will help people with endometriosis to make high-quality decisions about treatments.
Please click the link below to get started.
Exploring experiences following a normal laparoscopy for pelvic pain
Participate in our research that focuses on the emotional and health-seeking repercussions of individuals presumed female at birth (PFAB) who have undergone a normal laparoscopy for persistent pelvic pain with no identified cause for their pain.
Click the link to take part in a 10-15 min survey here. Those interested will be asked to provide contact details for a further interview.
EndoCann Trial
NSW this one is for you!
Researchers from Western Sydney University are looking for people with endometriosis to participate in a clinical trial testing two types of medicinal cannabis products on the symptoms of endometriosis. If you are aged over 18, live in New South Wales, and have a diagnosis of endometriosis, you may be eligible to participate.
Click the link below to participate in the study.
The role of infertility type, emotion regulation and self-compassion
Our study is interested in understanding what factors might contribute to why some people experience more difficulties than others. We are also interested to see whether adopting a kind attitude towards yourself can help protect and support you during this challenging period. The results of this study aim to benefit future individuals experiencing infertility by enabling evidence-based interventions aimed at reducing psychological distress and enhancing mental wellbeing to be created. Click the link below to complete the survey.
Sensory-cognitive changes in endometriosis
MCRI LongSTEPPP research
Researchers at The Murdoch Children’s Research Institute (MCRI) believe that periods shouldn’t ruin your life.
MCRI’s LongSTEPPP project is a 5-year study that measures and tracks periods, pain, quality of life, and mental health in young people affected by period or pelvic pain and endometriosis to find out how to best care for them. We’d love to hear from GPs or gynaecologists who are seeing patients with pelvic/period pain between the ages of 10 and 18, as well as young people who are dealing with pelvic and period pain.
Personal and Interpersonal Relationship Functioning of People Living with Endometriosis
Join us to uncover how endometriosis shapes not just your physical and emotional world, but also your relationships and self-perception. Our groundbreaking study is diving deep into these connections, aiming to enhance our understanding and improve support for those living with endometriosis.
Click the link below to complete the 20-minute survey.
Young People with Endometriosis and Their Parents or Guardian.
We are seeking pairs made up of young people aged 16-24 who have endometriosis and one of their parents/guardians. To participate in confidential, 1-on-1 online interviews with a female researcher for 1 hour each. Parents and young people will be interviewed separately. During the online interview, you will be invited to help us understand what the help-seeking process is like for young people and their parents/ guardians and tell us how you think young people and parents could be better supported in this process.
Access this link: https://bit.ly/endo-interview-eoi
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