Shining a Light on Endometriosis and Mental Health

World Mental Health Day is a reminder that mental health is just as important as physical health. For the more than one million Australians living with endometriosis, the connection between chronic illness and mental wellbeing is undeniable. Endometriosis is not only a physical condition—it can also influence emotional wellbeing, personal and social relationships, engagement in study and occupational activities, and health-related quality of life. 

At Endometriosis Australia, we are committed to raising awareness of the whole-person aspects of endometriosis – including the mental health challenges. 

How Endometriosis Affects Mental Health 

The symptoms, and their diagnosis and management, of Endometriosis can be associated with having to regularly navigate both physical pain and emotional strain. Research has highlighted a link between endometriosis and symptoms of depression, anxiety, and stress. Here’s some of the reasons why: 

• Chronic Pain and other physical symptoms: Persistent pelvic pain, heavy periods, fatigue, painful sex, and bowel and bloating issues can lead to ongoing stress, frustration, and feelings of hopelessness for some people. 

• Emotional Impact of Diagnosis: While receiving a diagnosis can bring clarity, it can also lead to new questions or worries for some people, with a sense of uncertainty about treatment outcomes and plans that people have for their future. Difficult healthcare experiences associated with the diagnostic process may result in feelings of invalidation, confusion, or distress.  

• Fertility and Relationships: Endometriosis can affect fertility and sexual wellbeing. This may lead to strain in intimate relationships, leading to emotions such as anxiety, grief, and self-criticalness.  

• Health-Related Quality of Life: Studies consistently show that people with endometriosis report lower physical and emotional wellbeing quality of life compared to people without endometriosis.  

• Financial Burden: The costs of surgery, treatments, and ongoing care can create financial stress, adding another layer of anxiety. 

Support and Resources in Australia 

Thankfully, there are organisations and services dedicated to supporting the mental health of people with endometriosis: 

Endometriosis Australia: Provides education, resources, and support groups to help individuals manage both the physical and emotional aspects of endometriosis. 

Mental Health Professionals: Doctors can provide referrals to psychologists, counsellors, and mental health social workers, with Medicare rebates available for eligible sessions. 

Support Groups: Connecting with others who understand the lived experience of endometriosis can reduce feelings of isolation and provide emotional strength. Consider joining the community at our Facebook group.  

Strategies for Managing Mental Health with Endometriosis   

While every journey is unique, there are evidence-based strategies that can help improve mental wellbeing or assist with managing the emotional impacts of endometriosis. 

Seek Professional Support: Psychologists, counsellors, and mental health social workers can provide therapeutic support that is focused on your individual concerns and needs. You can talk to your GP or another member of your healthcare team for recommendations and referral support. 

Peer Support: Sometimes just connecting with friends, family and even other people in the endometriosis community who understand the condition can be helpful.  

If you or someone you know is living with endometriosis, remember: you are not alone. Support is available, and reaching out for help is a sign of strength. This World Mental Health Day, let’s work together to break the silence, reduce stigma, and prioritise mental health and emotional wellbeing as part of endometriosis care. 

* If you need mental-health support or are in distress, please call: 

Lifeline 13 11 14 

Beyond Blue 1300 224 636