Share Your Story - Your Experience Matters

Endometriosis Australia is calling for storytellers with lived experience of endometriosis or other chronic pelvic pain conditions to share their endometriosis story and help raise awareness across Australia.

Every endometriosis journey is unique. By choosing to share your endometriosis story, you can help break down stigma, increase understanding, and ensure others in the community feel less alone.

We want to hear from people who are willing to share their endometriosis journey – whether it’s navigating the healthcare system, managing pain, balancing work and life, or reflecting on the support you’ve received along the way.

Your voice matters, and your endometriosis story can make a real difference.

Submit your story

Why share your endometriosis experience?

When you share your lived experience of endometriosis, you help:

  • Break down stigma surrounding endometriosis and chronic pelvic pain

  • Help others understand what it’s really like to live with endometriosis

  • Inspire and support people facing similar challenges

  • Highlight the urgent need for improved research, treatment, and support

More than 1 in 7 women+ live with endometriosis by age 49*, and every shared story has the power to create connection, awareness, and change.

Submit your endometriosis story and join us in amplifying the voices of our incredible community.

* Source: AIHW Endometriosis in Australia report

Young woman in a hospital bed giving a thumbs up, used for Endometriosis Australia’s Donate for Someone You Love campaign.

What kind of endometriosis stories can you share?


Group of diverse women smiling and supporting each other outdoors – symbolising community and support for those with endometriosis

We welcome a wide range of endometriosis lived-experience stories, including:

  • Personal experiences of endometriosis – diagnosis journeys, symptoms, treatment, daily life, or navigating healthcare
  • Moments of change, resilience, or hope – advocacy, self-advocacy, breakthroughs, or learning to live well with endometriosis
  • Community impact stories – supporting others, raising awareness, workplace or school experiences, or community-led change

Under-represented Voices Living with Endometriosis

We are particularly committed to hearing from people whose experiences are often under-represented, including:

  • Aboriginal and Torres Strait Islander peoples

  • People from culturally and linguistically diverse (CALD) communities

  • People living in rural or regional Australia

  • People with disability or chronic illnesses

  • LGBTQIA+ people

  • Young people and those experiencing endometriosis early in life

Sharing is optional, and you can choose how much information you provide.

Your perspective helps us advocate for more equitable & inclusive endometriosis funding and care.

Using Lived Experience to Shape Government Funding Priorities

We also invite you to share your views on what governments should prioritise when funding endometriosis care, research, and support services in Australia.

Your insights help ensure that policy and funding decisions reflect real lived experience, not just statistics.

You may wish to share:

  • Gaps in diagnosis, treatment, or care you have experienced
  • What services, research, or supports should be better funded
  • Barriers to accessing care (cost, location, waiting times, stigma)
  • What would have made the biggest difference to your experience

Share your story with us

Create your own user feedback survey