Frequently Asked Questions (FAQS)
Do you offer financial support to assist with the costs of living with endometriosis?
While we are deeply committed to supporting individuals affected by endometriosis, we are unable to provide direct financial assistance to individuals. We are aware of the high costs involved and empathise with the challenges you are facing.
Endometriosis Australia are dedicated to offering support in other meaningful ways. We focus on raising awareness, increasing education and raising funds for endometriosis research. We recently announced our scholarship program to train Endometriosis Specialty Nurses (Endo Nurses). The initiative aims to deliver 100 trained Endo Nurses to communities in remote and rural areas around Australia, to better support those with endometriosis. We will also be starting to deliver a Workplace Accreditation Program later in 2024, to help workplaces support employees living with endometriosis
Where can I find endometriosis support groups?
Whilst Endometriosis Australia does not deliver support groups, our website has a list of support groups that may be of assistance to you. Additionally, our Facebook page also has a Closed Discussion Group. This is a forum where those with Endo can share their experiences and ask questions for education purposes.
Can you recommend a GP or surgeon for endometriosis?
As an advocacy, awareness and education organisation, our ability to provide individual medical advice for your specific question is limited. Every person’s medical needs are individual and as such so should be your medical advice and treatment.
Endometriosis Australia is unable to offer a list of General Practitioners, Surgeons, Allied Health practitioners, or similar. This is due to medico-legal reasons as we are not an organisation which provides accreditation or training for medical professionals.
We cannot give referrals, however, encourage you to speak with your GP or specialist and utilise the tools we have available on our website to help in your discussions with your health professionals, including EndoZone to help you check your symptoms.
The information provided by Endometriosis Australia is general information only and does not constitute as professional medical or health advice. Always seek the advice of your doctor or other qualified health care professional with questions regarding your health or medical condition.
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How can I help get endometriosis medications added to the PBS?
At Endometriosis Australia, we are actively engaged through the Endometriosis Action Group, which maintains ongoing communication with the Department of Health. Our primary focus is to advocate for medical advancements deserving inclusion in the PBS. The PBS undergoes continual evaluation, and its evolution is driven by a confluence of data, research, and advocacy efforts. Rest assured, we recognise the financial strain of self-funding these medications and remain steadfast in our advocacy for the well-being of our Endo community.
Where can I find specialist Endometriosis clinics?
A list of specialist Endometriosis clinics can be found here.
How can I apply for the Nurses Scholarship program?
Our EOFY fundraising appeal was dedicated to raising funds to support Nurse Scholarships. We will be announcing the first round of scholarships available and the Expressions of Interest from the Australian College of Nursing in October 2024, with successful applicants notified in December 2024. The first intake for the 10-week course will start in the beginning of 2025. Please keep an eye on our social channels and website at that time.
What is the EndoAware Workplace Accreditation program?
Our EndoAware Workplace Accreditation program will start to be delivered late 2024. We are very excited to bring this program to organisations right across Australia. This program is being implemented from the Endo@Work Research study.
We are currently fielding expressions of interest on our website. Please fill out the form so you can be kept up to date on progressions and feel free to explore the information available.
How can I share my story on your blog or podcast?
Your voice matters and we want to hear your story. You could join us as a guest on our podcast or share your story for our blog or social media. We are reviewing our storyteller process and will reach out once we’ve ironed out our plans. If you’re interested in receiving updates, please subscribe to our mailing list.
How can I volunteer with Endometriosis Australia?
We are currently reviewing our volunteer intake strategy and will reach out once we’ve ironed out our plans. If you’re interested in receiving updates, please submit an expression of interest and subscribe to our mailing list.
How can I support Endometriosis Australia?
We greatly encourage supporters to raise awareness and much needed funds for research by hosting their own Endometriosis Fundraising Event! You could host a high tea, enter a fun run or plan an event in your workplace, and you can easily set up your own campaign or event page on our Endometriosis Australia fundraising platform. Our fundraisers are our everyday heroes.