20 May 2025
MEDIA STATEMENT

Endometriosis Australia welcomes $50 million commitment to research 

Endometriosis Australia (EA) welcomes the announcement of a new endometriosis research institute. The exciting new Ainsworth Endometriosis Research Institute (AERI) at University of New South Wales cements Australia’s efforts to find a cure for endometriosis. 

Led by director Professor Jason Abbott, $50 million has been invested into the new institute and associated medical biology research by AERI. This unprecedented investment in basic science research will focus on identifying the root cause of endometriosis. 

Currently, no cure exists for the disease, which affects close to 1 million Australians.  Those living with endometriosis are only able to manage symptoms rather than treat the cause. 

Endometriosis Australia, which has been at the forefront of advocacy, support and empowerment of the endometriosis community, is excited about the potential such a significant investment into research will have. 

Endometriosis Australia believes this watershed funding signals that those with endometriosis matter, and their future deserves our brightest minds and boldest commitments. 

Anna and Lily Ainsworth from Ainsworth Endometriosis Research Institute (AERI).

 Monica Forlano, Endometriosis Australia’s chair, said the announcement is a major step after years of advocating. 

“This investment in finding a cure to endometriosis is exactly what the community has been calling for,” Ms. Forlano said. 

“It sets a global precedent for philanthropy into endometriosis research.” 

“The continued push from our endometriosis community has been a major factor in keeping the spotlight on the immense need for research, treatment and support for those with endometriosis. We are proud of this brave community that has continued to speak about their experiences and by doing so, have continued to keep endometriosis in the broader conversation. We thank them for their resilience and their combined efforts.” 

Professor Jason Abbott will lead the new research centre.

Natalie Rupil, Endometriosis Australia’s general manager, said the investment would go a long way in funding research to improve quality of life. 

“Members of our community have told us time and time again how endometriosis creates significant challenges in their lives. We are excited about how this funding could create meaningful changes to the lives of everyday Australians.” 

Associate Professor Anusch Yazdani, Medical Director of Endometriosis Australia, said this investment is a monumental Australian commitment to supporting those affected by the disease. 

“Australia currently leads the way globally in research and advocacy, and this unprecedented level of investment demonstrates our commitment to improving diagnosis, treatment, and support for the estimated 190 million globally living with endometriosis.” said A/Prof Yazdani. 

Australia leads the way at World Congress on Endometriosis in Sydney

 Australia’s role as a leader will again be on display as Sydney plays host to the 16th World Congress on Endometriosis with the World Endometriosis Society from 21-24 May, 2025. 

The expansive program includes a pre-congress day hosted by Endometriosis Australia, where delegates from more than 60 countries will have the chance to connect and share insights from the latest research and innovations across the clinical, scientific and allied health spaces. 

Endometriosis Australia will be reporting back to the community on key developments, insights and research outcomes showcased at the congress. 

“We are pleased to see such a range of high calibre endometriosis leaders will be attending. We are excited to capture their insights to share back with our community as part our commitment to promoting wider endometriosis education,” Ms Rupil said. 

The Congress will be held at ICC, with the pre-congress day kicking off the program on 21 May before dedicated scientific sessions on 22, 23 and 24 May.  

Keynote speakers include: 

• Dr Takayuki Enomoto from Osaka University Graduate School of Medicine and Center for Genetic Medicine, Itami City Hospital, Japan, presenting on Cellular Biology and Application to Endometriosis. 

• Professor Caroline Ford from University of New South Wales, Australia, presenting on Endometriosis and Cancer 

• Dr Rahul Gajbhiye, from The Indian Council of Medical Research, India, presenting on Epidemiology and Endometriosis 

• Professor Laurie Keefer from The Mount Sinai Hospital, USA, presenting on Psychosocial Care of Patients with Chronic Pain and Disease 

• Dr Aline Talhouk from University of British Columbia, Canada, presenting on
  Artificial Intelligence and Applications to Health Endometriosis Care

For the full program visit: https://www.wce2025.com.au/live-program 

ENDS

Media Contact: media@endoaustralia.org
For more information:

www.endometriosisaustralia.org

About Endometriosis Australia:

Endometriosis Australia is a nationally accredited charity and the peak body for endometriosis in Australia. Since 2013, the organisation has been leading the charge nationally and internationally to increase endometriosis awareness, provide education programs, and fund research to improve the lives of those affected by this challenging condition.

Endometriosis Australia advocated for and supported the development of Australia’s first National Action Plan for Endometriosis (NAPE), aimed at improving patient and medical community understanding of the disease. This was a continuation of the organisation driving the first discussion of endometriosis in Parliament in 2017.  Endometriosis Australia is a nationally accredited charity that raises awareness, educates and funds research for endometriosis. We are committed to empowering patients with the knowledge to be in control of their healthcare and promoting patient-centered care solutions.