To take part in research studies, simply click on the research project and you will be directed to a website or online form. If there is no link, there are instructions provided in the description.
*Endometriosis Australia is not funding these studies, just assisting the researchers in finding participants. Please ensure you check terms and conditions to ensure that you qualify to participate.
Some of the topics discussed and/or covered can be confronting or troubling to some participants.
If you need support, please reach out to
Lifeline 13 11 14 or Beyond Blue 1300 224 636.
Do you want your research project featured here?
the following form to admin@endoaustralia.org.
Endometriosis Illness Perception, Acceptance, and Compassion
Endometriosis is a complex medical condition and a common cause of infertility in women. This disease can make natural conception difficult, leading many women to turn to assisted reproductive technologies (ART) such as in vitro fertilization (IVF).
“FertiPain” is a research project conducted by the team at the Fertility Center of the Lausanne University Hospital (Switzerland). This study aims to assess the pain experience of patients with endometriosis during in vitro fertilization (IVF) and determine whether the support provided by healthcare staff meets their specific needs.
The study includes a one-time, 5-10 minute anonymous questionnaire, ensuring your identity remains untraceable.
The Role of Nurses in Endometriosis-Related Patient Care
This project focuses on the role of nurses in endometriosis-related patient care. We would like to understand the skills or knowledge a specialist endometriosis nurse may need and people’s experiences of providing or receiving trauma informed care.
To find out more, click the button below.
Co-designing, Evaluating, and Implementing Supportive Care for Endometriosis
Are you a person: aged 18+, who has a diagnosis of endometriosis (and can provide evidence of your diagnosis), lives in Australia, can communicate in English and has access to the internet? Consider joining our 6-week intervention trial testing an online Acceptance and Commitment Therapy (ACT) based program for people living with endometriosis (ACTforEndo).
To find out more, click the button below.
Decisional conflict in individuals with endometriosis
We are seeking people who have been diagnosed with endometriosis to share their experiences of making decisions about symptom management. The survey includes questions about making those decisions, how you are feeling generally, and if treatment costs are a burden. The survey is anonymous, and the results will contribute to the creation of an online tool that will help people with endometriosis to make high-quality decisions about treatments.
Please click the link below to get started.
Exploring experiences following a normal laparoscopy for pelvic pain
Participate in our research that focuses on the emotional and health-seeking repercussions of individuals presumed female at birth (PFAB) who have undergone a normal laparoscopy for persistent pelvic pain with no identified cause for their pain.
Click the link to take part in a 10-15 min survey here. Those interested will be asked to provide contact details for a further interview.
Nutrition Stories of Women Living with Chronic Pelvic Pain
We would love to hear from women and those assigned female at birth about your thoughts on chronic pelvic pain and nutrition. This will help us to better understand the lived experience and plan better nutrition interventions for those living with chronic pelvic pain!
Click the link to participate in the survey.
The physiological and psychological profiles of individuals presumed-female-at-birth (PFAB) with endometriosis.
We need your voice in our research survey on the intersection of endometriosis and exercise. Your experiences can help pave the way for a more informed future.
Click the link to participate in Part 1 (online survey, open to all people in Australia) and be a part of this impactful journey.
Personal and Interpersonal Relationship Functioning of People Living with Endometriosis
Join us to uncover how endometriosis shapes not just your physical and emotional world, but also your relationships and self-perception. Our groundbreaking study is diving deep into these connections, aiming to enhance our understanding and improve support for those living with endometriosis.
Click the link below to complete the 20 min survey.
Informational support for individuals with endometriosis in Australia
Endometriosis impacts individuals not only medically but also affects every aspect of their lives. Therefore, informational support must extend beyond medical information to be more comprehensive and holistic. This survey aims to assess the informational needs of those living with endometriosis in Australia. To adequately address the needs of people with endometriosis, we must first understand their current challenges.
Click the link below to participate in the 10 minute survey.
Psychological factors contributing to pain in people with endometriosis
Sensory-cognitive changes in endometriosis
EndoCann Trial
NSW this one is for you!
Researchers from Western Sydney University are looking for people with endometriosis to participate in a clinical trial testing two types of medicinal cannabis products on the symptoms of endometriosis. If you are aged over 18, live in New South Wales, and have a diagnosis of endometriosis, you may be eligible to participate.
Click the link below to participate in the study.
The role of infertility type, emotion regulation and self-compassion
Our study is interested in understanding what factors might contribute to why some people experience more difficulties than others. We are also interested to see whether adopting a kind attitude towards yourself can help protect and support you during this challenging period.
The results of this study aim to benefit future individuals experiencing infertility by enabling evidence-based interventions aimed at reducing psychological distress and enhancing mental wellbeing to be created.
Click the link below to complete the survey.
Exploring financial burden and language barriers for people with endometriosis
This research project from Deakin University aims to understand experiences of living with endometriosis, especially the financial burden of endometriosis and the potential language barriers to the delivery of endometriosis information by healthcare providers.
Outcomes from this study may be used to inform and guide interventions targeted at managing financial security, enhancing practitioner-patient relationships, and improving diagnosis and support for people with endometriosis.
MCRI LongSTEPPP research
Researchers at The Murdoch Children’s Research Institute (MCRI) believe that periods shouldn’t ruin your life.
MCRI’s LongSTEPPP project is a 5-year study that measures and tracks periods, pain, quality of life, and mental health in young people affected by period or pelvic pain and endometriosis to find out how to best care for them.
We’d love to hear from GPs or gynaecologists who are seeing patients with pelvic/period pain between the ages of 10 and 18, as well as young people who are dealing with pelvic and period pain.
Endometriosis, motherhood and family relationships
Would you like to help us better understand motherhood & family life while living with endometriosis?
This study will increase understanding about how endometriosis can impact daily life as a mother, as well as how mothers feel about their family relationships, and other potential forms of support.
Click the link below to participate in the survey.
Endometriosis Illness Perception, Acceptance, and Compassion
This research project from the University of Tasmania is focussing how women and gender diverse people living with endometriosis view and manage different aspects of their symptoms, view their body, and information they would like healthcare providers to understand about endometriosis.
Complete an anonymous online survey below:
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