EndoVoices Making A Difference Together

Endo Voices and Feedback

All endo voices matter. Share your story and help us create better support for everyone with endometriosis across Australia.

Welcome to EndoVoices

EndoVoices used to be called our Advocacy Group. The new name shows the real experiences and strength you bring. Your voice guides everything we do.

Your Feedback Creates Real Change

When you share your feedback, you help shape:

  • Research – What gets studied and how
  • Resources – Information that really helps
  • Workplace support – Programs like EndoThrive
  • Better care – How doctors treat endometriosis
  • Government funding – Money for endometriosis support
  • Help for all communities – Support for First Nations people, diverse backgrounds, LGBTQIA+ people, CALD communities, young people, people with disabilities, regional areas and more

We create resources with communities, not just for them. Every voice matters.

Join Our Community

EndoVoices brings together people living with endo, doctors, nurses, researchers, and workplace supporters. Together, we build a community where everyone belongs.

We represent endo voices to governments and decision-makers, advocating for those individuals living with endometriosis.

Your stories and ideas guide change.

The Endometriosis Australia Stakeholder Engagement Forums (SEFs) members provide advice on, guide thinking regarding, and develop programs relating to improving the health and wellbeing of the endometriosis community.

The SEFs core groups are:

  • Community Engagement Forum
  • Clinical Engagement Forum
  • Research Engagement Forum
  • Workplace Engagement Forum
  • Support Services Engagement Forum

Endometriosis Australia represents all stakeholders in the sector, and communicates with the Commonwealth, State and Territory governments on the needs of those with the disease, the clinicians, allied and complementary medical practitioners treating them, and the research community identifying best practice to manage symptoms and treat the disease.

The Purpose of Advisory Groups is to enable Endometriosis Australia as Peak Body to consult relevant stakeholder members in discussions to formulate and respond to policy affecting the endometriosis community.

Stakeholder Engagement Forum Membership

EndoThrive workplace accreditation program

The EndoThrive workplace accreditation program enables organisations to sustainably and strategically take meaningful action to support their employees with endometriosis.